Full Title or Meme
A good medical Whole of Patient Experience is only created where the patient is informed and involved in each decision and how it fits into their care plan.
- This experience document focuses on only two subjects, the patient and the provider.
- It sill always be that others are involved or that different names are given to the subjects, but ithe care plan will be in the PCP office.
- While the most significant part of the patient experience might be the outcome, this page focuses on the part of the journey that leads to that outcome, but not on the outcome itself.
- Patient Choice needs to be top-of-mind as we move the entire medical establishment into the digital age.
In the absence of a single payer health care network, the US is blessed with a plethora of solutions, but plagued with the resultant lack of interoperability. As a result it has been impossible in the past for user's to effectively carry their health history around with them as the move about the country or even across town.
Health Equity requires that any patient that wants to access their health data can do give their capabilities and resources (or lack of resources). A variety of capabilities will be enabled with the trust registry to assure that vulnerable populations can be served when and where they chose.
A Complex Use Case
- A child is visiting their grandparents out-of-state. The child has a chronic thyroid condition and needs a prescription renewal fill locally. This requires a blood test and prescription refill at providers that have never seen the child previously.
- The user case will focus on a fully automated
- The patient is assumed to go through some sort of registration process with the provider's practice and is "known to the practice".
- A Medical Records Identifier will be assigned by the practice so that it can recall its own interactions with the patient.
- Every other practice that the patient visits will likewise create a Medical Records Identifier that it uses to track the patient.
- There will never be a good Patient Experience where the patient needs to know any of these Medical Records Identifiers.
- On subsequent visits to the practice, and at each care station within the practice, the patient will be reidentified in an appropriate simplified protocol.
It is generally agreed that it is better for doctors to have a full set of patient health histories to enable adequate care, especially in life-or-death emergency cases. FHIR, pronounced 'fire' is working on Information Sharing APIs, and the details of that is not addressed here. This page basically assumes that the information sharing part actually is deployed and works reasonably well.
- Patient histories are available to the patient on demand. A good Patient Experience will provide a complete set of records for the patient. These records are likely to be voluminous, so a paper set of records is to be discouraged.
- At the end of every care visit the patient will be provided with medical records of the visit that the patient can understand as well as changes to the care plan THAT THE PATIENT HAS SEEN WITH THE PROVIDER, UNDESTOOD AND AGREED TO.
Patient Care Plan
- The best Patient Experience will come from empathy with the patients journey, including the fear and discomfort that they will inevitably experience.
- The only valid care plan is one that the patient understands and agrees is best for them.
- See FHIR Resource Consent - Content Abstract: FHIR provides a Consent resource suitable for use by FHIR clients and servers to record current Privacy Consent state. The meaning of a consent or the absence of the consent is a local policy concern. The Privacy Consent may be a pointer to privacy rules documented elsewhere, such as a policy identifier or identifier in XACML. The Privacy Consent has the ability to point at a scanned image of an ink-on-paper signing Ceremony, and supports digital signatures through use of Provenance. The Privacy Consent has the ability to include some simple FHIR centric base and exception rules.
- Consent Receipt - need to find a user friendly description ****
- The care plan may not work and the patient may not communicate that with the provider.
- While technically the patient has the responsibility for following the agreed healthcare plan the provider must recognize:
- The patient may agree, but not understand what the instructions mean, or not accept the effort, cost or experience of following the plan.
- The patient may not have the ability to remember or perform all the steps required.
- The patient will get other advice from professional and commercial sites that contradict the care plan.
- The only way to judge the patient's satisfaction is to ask them.
- The only way to improve the patient's satisfaction is to try different strategies and, again, ask for feedback.
- Johns Hopkins Optimizing the Patient Experience (2017-11-20)
- AMA Six steps to improve patients’ experience in your organization 2017-09-07
- CLC (Chile) PATIENT JOURNEY MAPS 2016-10
- Physician Practice Five Steps to Improve the Patient Experience. (2015-11-12)
- See wiki page on Wallet User Experience