Healthcare Write-back

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Revision as of 08:09, 19 March 2021 by Tom (talk | contribs) (ONC Workshop)

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Full Title or Meme

Healthcare system need to involve the patient directly in their own care-plan. This requires the patient to write data back into their Electronic Health Record (EHR).

ONC Workshop

On 2021-03-19 HOLD ONC - Policy and Technology Workshop on Write-Back APIs 5 hours with workshops. (invite only 67 participants, many from ONC)

  • Micky Tripathi keynote
  • Steven Posnack - set the tone for write-back. No slides, not content.
  • Kevin Chaney - they work on apis, originally read-only, now moving into a multiyear effort for scientific discovery.
  • Patricia Flatly Brennan (Patty) - director National Library of Medicine NIH - researchers' perspective. Where is the data "written-back" to? How does the patient know where the data is shared? Inclusion. Funds major research. Defined "patient-generated" and "patient-defined" distinction
  • ONC is also supporting the creation of Health IT tools to make EHR data research / and AI ready:
  • Paula Braun - To what extent is NIH considering how data aggregators, such as public health, can provide derived intelligence as additional context that is relevant to the clinical context and patient-managed care? (How is the population determined to be representative?) Patty wants inclusion.
  • Josh Mandel - technology perspective - what do people to to extract information - how do we scale - what are use cases:
    • work flows for both research and clinical (he didn't mention public health - no one did)
    • clinician defines the data they want and sends a form to fill out. (then the patient doesn't even get a copy when they are done?)
    • strongly typed observation - blood pressure - blood oxygen
    • risk assessments


  • Does a write-back API make the app into an FTC medical device subject to regulations?
  • How does patient provide consent for data sharing?