Health Care Native App Example
Matching patient health care records and interoperability among EHR have been hard problems to address. Much of the focus has been on the health care providers rather than the patient. But now the patient has guaranteed access to their medical records, they might be able to overcome some of the resistance to sharing seen today. Patient control of the distribution of medical records would give patients both the appearance and the reality of limited access to private health care information. This example of a patient-oriented Native App for them to host on their personal Smart Phone is designed to show how patients might be the best answer to health care sharing in any case.The Pew Trust report sponsored a collaboration with the Rand corporation and reported this conclusion about an opportunity for a Patient-empowered solution:
In a report released in August 2018, RAND recommended a patient-empowered approach for matching involving two main components: validating patient information and a smartphone application, which would then be used together once developed.
- Smart phone apps have been generated by some large practices, often with support of their IT service providers. These apps do not provide patients with any choice other than "take it or leave it".
- There has been no sound business case to support the development of patient-oriented apps in the marketplace.
- Covered entities have HIPAA regulations to control how they handle the patient's medical records; but there is no such rules in place when medical records are under the control of the patient (or guardian).
Several trends have been seen that can enable such a Patient-empowered solution:
- Matching of patient records to the patient is a recognized problem that requires some solution to prevent unwanted patient outcomes. Efforts at a universal health care identifier for patients seems to be as far in the future as ever and no other solution has appeared on the horizon.
- The CARIN Alliance has published a code of ethics for health care information that moves beyond the control of HIPAA covered entities.
- The role of Smart Phones in Authentication has been expanding (see that wiki page for specific examples.)
- Microsoft has just introduced a open-source protocol to address performance issues with Blockchain. ION, or Identify Overlay Network, is based on an earlier blockchain project built by Microsoft and others called Sidetree.
It is generally agreed that it is better for doctors to have a full set of patient health histories to enable adequate care, especially in life-or-death emergency cases. This sample shows a way for the patient to both acquire and distribut health care information. Since the progress on giving patients access to their own health records may be more likely than cooperation among competing health care enterprises, a Smart Phone app is one way to overcome the blockage to information sharing. This path also gives the patient more control on exactly what information is shared. While patient choice may result in some critical information being with-held, more choice will give the patients greater confidence in sharing, which could have beneficial effects on health outcomes.
Federated Trust Anchor
- It is likely that a single anchor for a country's health ecosystem is required where any patient or provider can learn the status of any Web Site by providing metadata about the entity that operates the Web Site from a Federation Trust Registry.
- It is likely that the entity operating the Web Site will not be the health service Provider, and so a "On-behalf-of" Identifier is likely to be required as well.
Deborah C. Peel, MD Founder and President Patient Privacy Rights
The best Patient Experience is likely to be enabled by giving the patients the choice of which app to host on their phone based on their own experience with phone apps.
Emergency Contact Example
- Kantara sample with first demo of a Emergency Contact Information Use Case
. See an evolving example of this use case at http://controls.azurewebsites.net
- Pew Charitable Trust, Enhanced Patient Matching Is Critical to Achieving Full Promise of Digital Health Records. https://www.pewtrusts.org/-/media/assets/2018/09/healthit_enhancedpatientmatching_report_final.pdf
- Microsoft, Microsoft unveils decentralized identity protocol that works atop the Bitcoin blockchain. (2019-05-13) https://www.geekwire.com/2019/microsoft-unveils-decentralized-identity-protocol-works-atop-bitcoin-blockchain/
- The H-ISAC Healthcare Information Sharing and Analysis Center provides a forum for coordinating, collaborating and sharing vital Physical and Cyber Threat Intelligence and best practices with each other.
- Authenticate Node section 19 of (2018-07-24) IHE IT Infrastructure Technical Framework primarily relies on mutual authentication with no specific trust anchor other than X.509 certificate chains.
- IDEF health wiki pages.